I live in the Midwest, and the weather has fluctuated a lot this October. Around mid- to late this month, I suddenly started dealing with a lot of stuff thrown my way, random adrenaline rushes when trying to keep my eyes closed at night, days with red, achey feet or freezing purple feet instead, various sleep disturbances, depression-like symptoms coming on, a heartbeat feeling too weak at night, even when awake, and sudden motivation collapse. A friend said I might be dealing with the "October slide," yet I see it affects people in various ways, and I am confused

Hey guys. It's been about 7 months the GP has been trying to figure out what's going on with me. We eventually came to the agreement that I've got some kind of 'autonomic disregulation'. But every time she tries to refer me to someone they say "nothing to do with us". Rheumatology, dermatology (that was for the facial flushing), vascular, even cardiology didn't want to see me because I don't have tachycardia on standing. Today I saw a neurologist and thought it would finally be my breakthrough. No such luck. He said "this is not my domain, try cardiology". So I'm just wondering, what type of doctor are you guys actually seeing? Does any medical field deal with this better than others?

I am a young woman. I don’t smoke or drink. I have never had any chronic illnesses, and my BMI is perfectly fine.

Two months ago, I was suddenly struck by shortness of breath, and it has been with me constantly ever since. I am unable to take a normal breath; I feel a heaviness in my chest and a sensation that I am suffocating.

It gets even worse when I try to perform any activity—walking 50 meters or taking dishes out of the dishwasher feels like running a marathon. I am extremely weak.

Sometimes it gets so bad that I experience tingling all over my face, a tightening in my throat, my fingers contort, and I lose sensation in my legs for 10–15 minutes. ☹️

The worst part, however, is at night. I keep waking up around 3:00 or 4:00 AM feeling like I can’t breathe (even worse than usual), along with dizziness and heart palpitations/tachycardia.

Because of this, I ended up in the hospital. I underwent several tests, including a chest X-ray, a CT scan with contrast, an MRI of the head, a lung scintigraphy, an echocardiogram, a Holter monitor test, and a gastroscopy. Everything came back normal, except for low iron (24) and ferritin (8) levels, as well as tachycardia. My oxygen saturation has been between 94% and 100%.

My spirometry results were also reportedly normal. However, a test performed in a body plethysmography chamber showed parameters bordering on bronchial asthma, so the doctor prescribed Bufomix, to be used twice a day.

I have been using these inhalers for three weeks now, but unfortunately, I don’t feel any improvement.

I don’t know what is wrong with me. ...what to do. I’m terrified—I’m so afraid that I’ll have to struggle with these breathing difficulties for the rest of my life... :(

Has anyone else been in a similar situation? If so, what helped you?

Thank you from the bottom of my heart for any comments or advice! 🥹💕

Is there anywhere in/near Memphis treating dysautonomia for a 22yo female?

I’ve had on and off dizziness and out of it feeling with vision issues the last 6 months but mainly what really bothers me is when I’m in a conversation if I talk too long I start to get fatigued and cognitively fatigued as well.

It seems like it’s actually really hard to explain how I feel but it’s like my brain just kinda of shuts down and all of a sudden convo is labored and talking is harder. Eyes immediately feel heavy and only thing that helps is laying down and putting my cpap on. Anyone else?

So I’ve had facial flushing for about 6-7 years now. It has become more and more frequent. I usually have several episodes in a day. But now, I actually see that the flushing is “permanent” cheeks and nose. Always pinkish and then deeper red during and episode. As I’m writing this I feel the blood vessels on the skin of my nose filling up with blood and just burning. But I’m sitting down on the couch! 🤷🏻‍♀️ anyone else experiencing this kind of “permanent” skin flushing/blushing?

hi all, after a tumultuous (non dysautonomia related) few months, I added a morning latte to my day, and I see definite improvements after drinking it. I'm not just talking the normal boost you get from caffeine, but it really helps me with exercise intolerance and orthostatic hypotension too. I add about 6-8oz fairlife lowfat (high protein) milk with a little sweetener so it's not just the plain coffee. I am not a lifelong coffee drinker (started drinking it more regularly the past several months with a break in the middle) and think it's possible that the effect will fade in time. But I'm curious if anyone else sees this. I am also taking in 5-8g Na/day plus wear compression etc.

Has anyone been able to find a neurologist that will treat/ diagnose dysautonomia that takes MediCal/ CalOptima?? Preferably in SoCal. I’m having a hard time finding one that deals with any sort of dysautonomia.

To begin with, I am not asking for a medical advice.

I just noticed that very often they recommend electrolytes for dysautonomia symptoms. Does it mean that improvement in symptoms after drinking electrolytes confirms the diagnosis?

Based on my example: blood tests ok, bp monitor ok, heart ok, vitamins ok. But after taking electrolytes the symptoms seem to be less severe.

AI has its own explanation for that but I wonder what is your reasoning for that topic?

I've got IST, but I've also got health anxiety. So like......I'm not quite sure if it's beneficial for me to be checking my pulse all the time, idk if anyone else does? If I need to? Or if maybe it's better to just never check it due to the anxiety?

My doctor kinda diagnosed me and just told me I could use propanolol if i'm uncomfy. But I just always have this need to know if my heart is beating super fast.......? When i have surges or symptoms I've been trying not to check it but then I'm like SHOULD I know my hr? How do u guys do it?

I feel like as soon as I empty my bladder, I have to go again! Its soo annoying

I am a 17-year-old senior in high school. I've had chronic migraines since I was around 6 years old, and around junior high, I became chronically ill (after contracting COVID). Not to mention, I have severe anxiety, depression, and ADHD. This led me to join online school for both 7th and 8th grade. Around Freshman year of high school, I finally felt ready to join my peers. I would miss around 4 days of school per month due to being ill... My symptoms began to get worse with stress as the years went on. The school had a note placed in my file about my illness, and all absences were excused, so absences weren't uncommon for me. Around Junior Year my school began to start having problems, the absences began to become more frequent and they would no longer take excused notes. I had gotten sick from mono and strep throat at the same time (ik what you're thinking: yikes..... yeah, I'm never sharing water with my "bestie again"). After that, my immune system was shot. This led to an increase in absences. Thus, I began getting bullied by teachers for missing school due to illness, so my mom set up a meeting with the teachers, principal, and school board. This began the long process of applying for a 504 plan. I was trying my hardest to turn in assignments on time while battling chronic illness. One of my teachers even told my mom, "It's a shame she never comes to school; she's such a hard worker..." Every Single one of these teachers knew what I was going through yet chose to ignore it. Fast forward to this year, I was finally diagnosed with POTS, Hypermobile Ehlers-Danlos Syndrome, Chronic Fatigue Syndrome, and MCAS. The school is still working on my 504 plan; I am currently in my 2nd quarter of Senior Year. They do have me registered under ESE. I have recently been having problems with 2 of my teachers and my counselor. I am wondering if anyone else switched to online after being diagnosed as chronically ill. The only problem is that I have an Early Childhood Education class that they will not let me take online, which allows me to get a CDA Certification. Any Thoughts? I tried requesting a blended option during summertime, which my counselor first approved, but then she retired :( Also, if any of this doesn't make sense, please let me know....

One of the multitude of symptoms i have —that just started about a week ago—is that nothing I eat tastes good. Just tastes like cardboard, & I’ve always been a real foodie. I mean it’s nice not to have to worry about my weight all the time, but I want my appetite back! Or at least my taste. Also my vision has been getting blurrier for about the same amount of time, & I read all the time. It may be sad but prob the two things I get the most pleasure from are deteriorating. Any hope of them returning??

Got some from Amazon but they were a cheap nylon and didn't work at all and were irritating.

Can anyone recommend some good brands that work

Edit- I keep seeing these fancy patterned 'compression' socks advertised on various websites. Are any of them any good?

Hi guys, wondering if anyone else has an absolutely terrible immune system. I've always been pretty sick, but ever since my pots started I've been basically constantly ill. Every tummy bug, cold, or any kind of virus going around runs me down for weeks.

Does this happen to anyone else? And is there anything I can do to try to give my immune system some more support? I already eat pretty well, take multivitamins including extra vitamin c when I'm sick, and prioritise rest basically all the time

Or cold weather

hello! i recently had to quit my job that required me to stand for long periods of time without breaks. i am in desperate need of money but unable to stand for a while or walk for over 20mins. i am having a lot of trouble finding potential work. when i worked at my job i recently quit, i had to take 1000mg of ibuprofen and 1000mg of tylenol to get through a 9.5 hour work day (during summer). i really need a way to make money. i cannot do many art related things, so pretty much anything commission based is off the table. what jobs can i work? i desperately need money.

any and all advice is appreciated greatly!!

Hi everyone!
I’m 31F and currently dealing with suspected dysautonomia/POTS and inappropriate sinus tachycardia (IST). I need to have a tooth extracted soon, and I’m honestly pretty nervous about the procedure, especially because of my heart rate issues.
I currently take ivabradine 2.5 mg twice daily for my heart rate and oxcarbazepine 600 mg nightly for a mood disorder.
I’ve had episodes where my heart rate suddenly spikes quite high, sometimes even while resting or sleeping, along with dizziness, weakness, and feeling faint. I’m still undergoing cardiac testing to understand everything.
I’m trying to figure out which sedation option might be better tolerated with my conditions, whether that’s:
Local anesthesia (possibly without epinephrine)
Nitrous oxide (laughing gas)
IV moderate or deep sedation
General anesthesia
I’m also concerned about how sedation might affect my heart rate and blood pressure, whether IV fluids are typically given, and whether my medications could interact with anything used during the procedure.
I’m currently waiting to hear back from my doctors and plan to discuss everything with the dentist before making a decision.
For anyone with POTS, dysautonomia, or IST:
Have you had a tooth extraction or other dental procedure while dealing with these conditions?
What type of anesthesia or sedation did you receive?
Did you experience any heart rate or blood pressure issues during or afterward?
Were you given IV fluids or any special monitoring?
Did you need to adjust your medications beforehand, or were you able to continue them?
Did you have your procedure at a regular dental office, an oral surgeon’s office, or a hospital?
I’d really appreciate hearing your experiences, especially if you take ivabradine!
I know everyone’s situation is different and I’ll be following my doctors’ recommendations. I’m mainly hoping to hear how others handled their dental procedures and what helped them feel comfortable and safe.
Thank you! ❤️

I was given 2mg slow release melatonin (also on low dose mirtazapine, been on it for weeks) because while I was sleeping on mirtazapine, I wasn't sleeping early enough and doctor wanted the melatonin to help shift my circadian rhythm back to normal. Yet the last 11 days my sleep has been absolute shit, super weird dreams, waking up like 5 times a night and not always being able to fall asleep again, some stomach aches at night. I'm going back to the doctor but in the meantime wanted to ask if anyone's had BAD experiences with melatonin.

Hi,
If anyone sees a vascular specialist involving with POTS/dysautonomia NHS please recommend.
For venous pooling issues
Thanks

I'm starting to have vision issues like seeing fog or something moving in the background.

Hello all,

I had a tilt table test in which my HR went up by 40BPM but the report said it was just anxiety. I don't understand because that was the first time I was calm in over a month due to some house issues. I feel so confused. Any advice? I see my cardiologist soon to talk about the test.