r/Lyme • • 18h ago

Rifampicin interaction with artemisinin

3 Upvotes

Anyone take them together?

Artemisinin is cleared by CYP2B6 which is majorly upregulated by rifampicin so assuming I should take more


r/Lyme • • 10h ago

Question I have bullseye rash. Is my doctor putting me in danger?

3 Upvotes

3 weeks after possible ticks exposure I noticed a bullseye rash. Knowing what Lyme is I rushed to the hospital, where they took my blood sample for analisis (IgM positive) and immediately prescribed me amoxicillin.

Three days later I went to a doctor who's supposedly a Lyme expert. They want to run a DualDur test, but they don't have it at hand and I have to wait a week for it.

In the meantime they told me to stop taking antibiotics for the entire week before the test as it may affect results. The test would be done 29 days after possible infection.

I know that quick treatment is important for full recovery.

Are they putting me in danger by stopping treatment for a week?

Edit: Thank you all for the responses. I thought it was very suspicious that they wanted to leave me without antibiotics for a week, while I have clear signs of infection. I'm going to look for another doctor.


r/Lyme • • 19h ago

Question Question about herxing

3 Upvotes

Hey all, would love any perspectives on this --

I'm still pretty new to treating a confirmed chronic Lyme infection. I started my first round of antibiotics in September and right away, the symptoms I had been experiencing (brain fog, inflammation, exhaustion) all went from like a 3 out of 10 in terms of intensity to maybe a 7. Gradually over the course of the month they went back down to maybe a 5 or 6, but still significantly more intense than pre-abx.

Antibiotics started to mess with my stomach, so with my LLMD's approval I stopped after a month. After 10 days of nothing to recover, I started on Buhner herbs. Once again I'm noticing that the symptoms are getting stronger.

Seems like herxing? But what seems strange to me is that at no point since I've started any of these treatments (even after "clearing out" for 10 days post-abx) did my symptoms go back down to where they were pre-abx. It's like a new level of intensity was unlocked and that's where I am now, as a baseline. Furthermore, none of the herxing has been "sharp"; it's been this sort of flat, slow level of increased intensity that's about the same every day.

Is this a common experience, should I be worried about anything?


r/Lyme • • 1h ago

Question Supplementing glutathion causing fever next week?

• Upvotes

I started suplementing Glutathion last week. Now 6 days later I am having a fever. I read a research that low glutathione levels suppress fever (in rats, no research in humans). I think maybe my body is able to generate fever again due to the glutathion, which could be a good sign to fight Borelia. Does anyone know anything about this or experienced this yourself? Other explanation is that I have a new infection, which I doubt because my sleep data hrv and rhr were good last night


r/Lyme • • 2h ago

Question Vascular Leg Pain Remedies?

2 Upvotes

Female, diagnosed one year ago with Lyme borrelia, Bartonella, babesia, mycoplasma, chlamydia pneumoniae.
I started battlefield busters right away, followed by a Cowden/Buhner herbal protocol. No leg when I started treatment. I’ve been working with a Lyme Literate Naturopath Doctor since the beginning.

About 6 months in, I started nutrient IVs and high dose vitamin C IVs. We paused bio-film busters and lowered the anti-microbial dose during this time as I was herxing quite severely. Dull, aching leg pain started to ramp up at night or when lying still so I would take Tylenol or Advil occasionally before bed. Leg pain got progressively worse and felt similar to growing pains. Like a deep, internal ache I couldn’t get to. It’s keeping me from falling asleep, staying asleep and I’ve become reliant on over th counter pain meds which I know is very bad for me. Typical SSRIs don’t work for me and I’m nervous to try much else in the pharmaceutical realm given to how I’ve reacted to things in the past.

I tried massage, physiotherapy, chiropractor care, osteopath, acupuncture, rife machine, bioresonance, you name it. I tried topical CBD and magnesium, LDN (was not able to make it past the increase in symptoms in the first month). I tried B12 shots, some initial relief but then pain returned to same levels. I played around with pausing and restarting anti-microbials. Same thing occurred. Compression socks have consistently helped, walking around helps, legs up the wall as well. Pain almost always worse at night, especially when lying down.

And then it clicked, I haven’t taken a biofilm busters in months because my job gets busy in summer and I wasn’t able to a handle a herx at the time. I had a few days off last month and I took half my regular dose. The herx was massive but I had 2 glorious days with 1/4 the amount of leg pain I usually I have. Fast forward, today, I’ve developed extreme sensitivity to my usual doses of anti-microbials, etc. so I went with half a NAC pill (my usual dose was 1800 mg NAC per day, 1500 mg of Bromelaine per day with minimal herxing). However, this time I herxed and my leg pain ramped up.

I think that my driving issue is vascular with a side of consequential nerve irritation I have yet to find anything relatable in this subreddit about this type of pain. Wondering if anyone can relate or has a suggestion on relief? I just want to sleeeeeeeep!


r/Lyme • • 15h ago

Question I’m at a total loss - do I need to switch providers & completely change directions for my treatment?? Advice desperately needed.

2 Upvotes

I’ve been at this a year with my Lyme literate TCM. Who I have deeply trusted this entire time. Her assessment and my testing definitely show I’ve had chronic Lyme for quite some time. I don’t know when my bites were exactly. But I have Lyme babesia and Bart plus several other co infections that lit up. I probably had fatigue and other neurological symptoms for years that fell under the radar. But last year, I developed horrific body pain basically over night. Which is what pushed me to the Lyme diagnosis and finding my TCM.

The body pain: shooting, stabbing, sharp one second, to deep bone throbbing aches the next second. From head to toe. Moves by the second to minute. From sun up to sun down since last year. It is like a light switch - it will randomly just turn off one day for a few weeks to maybe even months, then one night will randomly come back full throttle. It has done this to me several times now in the last year.

I’ve been doing acupuncture weekly since last October. With my TCM. I did liver support and immune support from last October through April and in April I started the ABAB Byron white formula. I’m just now starting the AL (Lyme) BW formula. The pain doesn’t respond or calm down to ANYTHING when it is present.

I’m coming out of 2 months almost symptom free, and almost 2 weeks ago the body wide pain came back over night. I am absolutely miserable. My TCM today told me we just need to keep going.

But I am in so much pain - my ChatGPT is telling me I need to start thinking of different routes - that I should see some improvement by now and potentially seek out another LL provider and consider antibiotics and I am at that point. I’ve been avidly against antibiotics and so is my TCM but I’m literally at a loss rn. I’m in Montana and she is the only one in town I trust. Does anyone have recommendations for Lyme providers in Montana?? I’m so fucking terrified that I’m a year into this and what if this entire treatment hasn’t been working for me and I am thousands and thousands of dollars into this and still slipping into these flares that are just unbearable pain day in and day out. I’m literally terrified of just everything now.

I don’t know what to do and really need advice. My TCM says she’s never had a patient she hasn’t gotten into remission. But I’m getting the impression I’m a little bit of a question mark to her now since we cannot get this body pain under better control. It feels nerve related and also vascular related. It doesn’t behave like typical neuropathy and it doesn’t respond to ANYTHING to treat neuropathy. In fact it doesn’t respond to anything at all. When the flip is on, NOTHING relieves it. No acupuncture, no gabapentin, no saunas, no amount of detox, nothing.

I’m at a total fucking loss and terrified I’m just going to be a question mark forever and never get this under control.

Edit: I’m open to doctor recs from across the US with Telehealth. I’d prefer someone that’s open to both herbs and antibiotics.


r/Lyme • • 16h ago

Does this look like a Lyme reaction or an allergic reaction? Spoiler

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2 Upvotes

Pulled a tick out a few days ago and left with this very itchy spot. I’m thinking it’s an allergic reaction, but should I get it checked??


r/Lyme • • 20h ago

Artemisinin capsules Europe

2 Upvotes

Hello!
Does anyone have a good source for buying high dosed artemisinin capsules in Europe for a fair Price?


r/Lyme • • 2h ago

does this look like a lyme reaction? or normal? Spoiler

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1 Upvotes

I was in the woods on Saturday and checked for ticks after but woke up to one latched onto my calf on Sunday morning. I got kinda nervous and ripped it off and disposed of it but it was a small black/dark brown tick the size of a sesame seed. It was latched for less than 10 hours. It seems to have a bruise in the middle and maybe some puss, the ring hasn’t grown in size (if even a ring) but has become more red. It hurt pretty bad day 1 and then less day 2 and 3. I was in western massachusetts. thoughts?


r/Lyme • • 10h ago

Question Negative tick-borne panel...questions.

1 Upvotes

Ok, so backstory...

I lived in small town West Virginia until I was almost 9. I climbed lots of trees. I got lots of tick bites on my head. I had thick hair and my mom wouldn't notice until they were huge and swollen, then she would touch a hot match to them to get them to release. I had no less than 10 tick bites like this.

I was diagnosed with Scarlet fever 3 times growing up, at ages 6,12, and 18. Otherwise, I got sick often.

As an adult, I have struggled with one weird, inexplicable health issue after another. Then, at 30, I got meningitis. And at 33, Epstein-Barr...ended up with chronic EBV.

Finally at 45, was diagnosed with Ehlers Danlos Syndrome, so that explains some stuff...but then at 51, diagnosed with lupus and rheumatoid arthritis.

I have wondered about lyme for years, but never got tested.

My new dr was shocked that I hadn't been tested, so she ordered a big lyme panel. Then I researched the types of ticks common in WV in the 1970s, and everything pointed to the type that caused Rocky Mountain Spotted Fever...which apparently was what many people diagnosed with Scarlet fever ACTUALLY had.

So, we tested for that as well. I was sure one would be positive.

Nope. All negative. The entire panel. And I am feeling like something was missed. Do I just accept it? Or ask for other tests?

These are the tests, through Labcorp:

Spotted Fever Group IgG Spotted Fever Group IgM Lyme Total Antibody CIA Babesia microti IgG E. chaffeensis IgG A. phagocytophilum IgG


r/Lyme • • 16h ago

Advice Need help or advice PLEASE

1 Upvotes

Hi, so I might have lyme's arthritis. It started in January when i twisted my left knee. That eventually got better. In early march the knees were feeling great and I did an eight mile hike. Over the next several weeks my right knee started having some pain. Then it started swelling. It got swollen enough that I could only bend my leg to ninety degrees. I went through it with an orthopedic doctor, he diagnosed it as pfps and sent me to physical therapy. I completed a month of therapy and was no better so he agreed to do an mri. The mri showed nothing. Around this time the right knee was getting much better and less swollen, but the left knee was swelling up. The doctor told me to continue with pt. In September I was fed up and went to a different doctor. He told me this isn't normal for your age (21) and ran a bunch of tests. The white blood cell count in the synovial fluid was 15,000, as well as a CRP of 44.7. Something was causing inflammation. Then the lyme disease test came back positive. IGG was 45 and IGM was 2.47. So I am 2.5 weeks into a month of doxycycline. At first I thought it was helping but the last few days have been worse. Not sure what to do or who to see after this. Not even positive if this is lyme disease, I haven't really had any other symptoms. Currently I don't have much swelling, mostly just pain in the right knee. Any help would be appreciated


r/Lyme • • 20h ago

Santa Maria Health Center for Integrative Medicine

1 Upvotes

i’m wondering if anyone has been to this clinic in baja california? i read a comment in the medical tourism subreddit about someone going to this clinic for lyme & finding relief.. hoping to hear stories of personal experience 🙏🏽


r/Lyme • • 22h ago

Question I was in Allegheny National Forest in mid June and need any advice or help

1 Upvotes

This all started about three months ago right at the end of July. I got really bad headaches and chest pain with air hunger. When I got to college about a month later it got worse and went to the er because my heart would randomly start racing out of no where to about 180+, I have arm, chest, neck, arm, back (between shoulder blades), and shoulder stabbing and aching pains. I got ecgs, chest and neck X-rays, blood work. They said my ferritin was a bit low but not low enough to cause this. I went back to er a month later because my breathing got so bad. They gave me muscle relaxers which only made me tired. I have asthma but have been treated for it (tried albuterol, steroid inhaler, and prednisone). None helped. I went to a cardiologist and got a week long heart monitor and nothing came back and am getting echo later this week just Incase but I’m only 19 and they don’t think it is heart related unless it is an autonomic disorder. I saw a spine specialist and he said it was muscles in back running to neck causing nerve pain. I’m afraid this all could be Lyme but idk. I still have terrible air hunger 24/7 and I have developed popping across chest especially upper middle and shoulder. Any advice will help. I’m afraid my two er visits either missed a something somewhere or I just have not gotten the right tests yet. Any advice will help PLEASE, I know Allegheny is known for tics carrying Lyme.