Posting anonymously because this is incredibly personal, and I honestly don’t know where else to turn. I just need to get this off my chest, and I’m hoping that maybe someone here can relate.
I’m a 26-year-old woman with two autistic brothers. My fraternal twin brother has severe autism and significant support needs, and my younger brother, who is 24, is considered high-functioning.
Growing up in my household was incredibly difficult, and looking back, I think it was much more traumatic than I allowed myself to acknowledge for a very long time.
My twin brother was extremely loud, disruptive, and at times physically aggressive. Our household often felt chaotic and unpredictable. So much of my parents’ time, energy, and attention went toward meeting my brothers’ needs that I often felt invisible. I learned early on that my feelings and struggles came second, and that I was somehow supposed to be the one who was okay.
My parents also struggled with their own mental health issues. I know they loved me, and I know they were doing the best they could in many ways, but that doesn’t change the fact that I often felt emotionally neglected. They were loving and caring in some respects, but in others, they weren’t there for me in the ways I desperately needed. There were also times when I was treated in ways that were genuinely hurtful.
It’s difficult to explain what it’s like to grow up knowing your parents love you while simultaneously feeling like your emotional needs don’t matter.
As I got older, I began developing significant mental health struggles of my own. It started with OCD and anxiety, but eventually progressed into severe depression and symptoms that I can only describe as trauma-related.
I’ve spent most of my life feeling like I don’t belong anywhere. I’ve always struggled to make and maintain friendships. I’ve never really felt understood, and for as long as I can remember, I’ve struggled with an overwhelming sense of self-hatred.
I attempted college, but my mental health deteriorated to the point that I had a breakdown and was hospitalized for suicidal thoughts. Eventually, I began to recover, and I decided to pursue nursing because I wanted to help people the way others had helped me during some of my darkest moments.
I became a registered nurse and eventually went into psychiatric nursing. For the first time in my life, I felt like I had a purpose. I could take some of the pain I had experienced and use it to help other people who were suffering. I genuinely loved that aspect of my job, even though the work itself could be incredibly challenging.
For a few years, that sense of purpose helped keep me going.
But eventually, everything I had spent years trying to push down started resurfacing.
My depression became debilitating. My anxiety began interfering with nearly every aspect of my life, including my ability to function at work. I stopped enjoying things. I continued to struggle socially and felt painfully alone. My self-esteem was practically nonexistent.
I also carried an enormous amount of guilt about my family. As irrational as I knew it was, I somehow blamed myself for my twin brother’s autism and for all the pain and difficulties my family had experienced because of it.
I hated myself. I hated how anxious I was. I hated that I couldn’t seem to function the way everyone else did. And more than anything, I hated that I couldn’t seem to escape the effects of my childhood.
I continued going to work, but I was clearly struggling. Some of my coworkers noticed how anxious and overwhelmed I seemed. Over time, I became close with three coworkers, one of whom eventually left to work somewhere else.
Recently, my mental health reached an extremely dangerous point.
I became severely suicidal. I wasn’t just passively wishing I could disappear anymore. I was actively thinking about ways to end my life, and looking back, I genuinely don’t know what would have happened if someone hadn’t intervened.
Out of desperation, I reached out to the former coworker I had become close with. She invited me to her house, where we talked about what was happening. She encouraged me to go to the hospital, but I refused. I was terrified of being hospitalized again, and I don’t think I fully understood just how serious things had become.
She ultimately let me leave, but she was concerned enough that she contacted the other two coworkers I was close with and asked them to keep an eye on me.
They did.
When my condition continued to deteriorate, all three of them came together and intervened. After one of my shifts, they insisted that I go to the emergency room for a psychiatric evaluation.
I reluctantly agreed.
At the ER, I was told that I needed inpatient psychiatric treatment and that if I didn’t agree to be admitted voluntarily, I would be hospitalized involuntarily.
I agreed to go.
I spent approximately a month in the psychiatric hospital before being discharged to a partial hospitalization program. Unfortunately, I was still struggling with significant suicidal thoughts, and the program sent me right back to the hospital.
My second admission was even more difficult than the first. I don’t feel comfortable sharing everything that happened during that hospitalization, but I was in an incredibly dark and frightening place mentally.
Thankfully, the treatment I received eventually began to help. After a little over another month in the hospital, I was discharged.
I’m now about two weeks out from my most recent hospitalization.
And while I’m doing better, and I’m genuinely grateful that I received the help I needed, I’m struggling with a lot of complicated emotions.
I’m embarrassed. I’m ashamed. I’m frustrated. I’m grieving.
My coworkers still check in on me, and they’ve promised to keep everything confidential. I’m incredibly grateful for them, and I know they may very well have saved my life. I’m currently on leave from work while I continue recovering.
But I can’t stop thinking about how I got here.
I feel like I’ve spent my entire life fighting just to feel okay.
I’m exhausted from being anxious. I’m exhausted from being depressed. I’m exhausted from hating myself and feeling like I’m fundamentally different from everyone around me.
And if I’m being completely honest, I’m angry.
I’m angry that my childhood was so difficult. I’m angry that I didn’t get to experience the kind of family life that so many other people seem to take for granted. I’m angry that so much of my life has been shaped by circumstances I had absolutely no control over.
Sometimes I wish I had grown up in a “normal” family, whatever that even means.
And this is the part that makes me feel especially guilty to admit:
Sometimes I wish my twin brother wasn’t severely autistic.
I love my brother. I really, truly do. I would do anything for him, and I know none of this is his fault. He didn’t choose to have autism any more than I chose to grow up in the circumstances I did.
But sometimes I can’t help wondering what our lives would have looked like if things had been different.
Would my childhood have been happier? Would my parents have been more emotionally available? Would I have grown up feeling more secure, more loved, more confident? Would I still struggle so profoundly with my mental health?
I know there’s no way to answer those questions, and I know wishing things had been different doesn’t change anything.
But I still grieve the life I never got to have.
And then I feel guilty for grieving it, because I know my brothers have their own struggles, and I know my parents have suffered too.
It’s this endless cycle of sadness, anger, resentment, guilt, and shame.
I wish I could relate to people my age. I wish I had a close group of friends, or even a single friend at all. I wish I knew what it felt like to be genuinely happy and comfortable with myself. I wish I didn’t have to work so hard just to get through everyday life.
I wish I could stop feeling like there’s something fundamentally wrong with me.
Most of all, I wish I didn’t feel so incredibly alone.
I know this post is long, and I apologize for that. I don’t even know exactly what I’m hoping to get out of sharing all of this. Maybe I just need someone to hear me. Maybe I need to know that I’m not the only person who grew up with a special needs sibling and came out of that experience carrying a tremendous amount of emotional pain.
I feel like the experiences of siblings are so often overlooked. We’re expected to be understanding, patient, independent, and resilient. We’re expected to recognize how difficult things are for our parents and our disabled siblings. And of course we do.
But sometimes I wonder, who was looking out for us? Who was making sure we were okay?
I love my family, but I am also deeply hurt by my experiences growing up. I’m trying to figure out how to hold both of those truths at the same time.
If anyone here has experienced similar feelings, especially the guilt, resentment, loneliness, or lasting mental health struggles, I would really appreciate hearing from you.
I don’t necessarily need advice or solutions. I think I just need to feel understood for once.
Thank you so much to anyone who took the time to read this. It means more than you know. ❤️