Repost because I was accidentally advertising the brand of my food lol. Dinner tonight is limon potato chips.
Woke up at 5 this morning to drive several hours to a pain specialist. I've had chronic migraines for the last 15+ years that I just haven't gotten any real help with from all the local doctors/specialists I've seen. I've also had neck/shoulder pain the past year thats steadily gotten unbearable even though everyone I've seen for it said my scans showed nothing wrong so theres no reason for it to be hurting.
The whole appointment was overwhelming. They had sheets upon sheets of intake paperwork for me and then a different set just for migraine pain. My neurologist never asked for any of this. I didn't even know how to fill half of it out. How many migraines on average a month? Headaches? Migraine symptoms without pain? What was your average pain level?
I dunno, man. A lot. Debilitating. I've just been trying to get through this day by day, I can't even think monthly. I have poor interoception too, so beyond I'm in pain I struggle a lot to name it.
My doctor was this nice looking, younger woman and while I was able to tell her what I have been prescribed before, most of what she said went over my head. Different drug classifications, nerve blocks, physical therapy. Other stuff I can't even remember. She was really nice the whole time but I just felt lost. I've been struggling with migraines for over a decade and have gone to multiple doctors and neurologists trying to get help, and most of what she was saying was brand new to me.
She did a full physical on me and asked me in depth questions about all my symptoms and tested my reflexes and examined my neck and had me do all kinds of weird movements. Girls, my last neurologist didn't even take my blood pressure!
Apparently I have occipital migraines and possible secondary cervicogenic headaches. Shes ordering me more scans, scheduled me an occipital nerve block, putting me in physical therapy, and wanting me to see a new neurologist that she recommends in that city. She said we'll see about more treatment after the nerve block and scans.
No doctor has ever even told me the type of migraine I had before. It wasn't like my old doctors didn't believe me. They did. I got different scans over the years and I got thrown a lot of different preventative meds that. never. worked. But it was like they weren't seeing me? They just heard "migraine" and went oh okay try this. Oh you had that already? Try this then. Rinse and repeat. This doctor actually looked at me.
It feels like I should be happy. She listened! Diagnosed me! Is throwing several new treatments at me even!
But I just feel lost and angry and grieving almost. Like this doctor was so nice and so knowledgeable and I've been in pain for goddamn years and instead of proper help Ive been surrounded by incompetent doctors who didn't seem to care!! I'm upset she was so attentive because it made me realize all my other doctors weren't.
I feel really really naive. Of course those other doctors didn't care. It's why I kept switching, kept trying to get more scans, kept trying to find a different, better doctor. But I feel stupid seeing how stark the actual difference between a doctor who really listened to me and all the others who barely consulted my chart. This hours drive away pain specialist was a bit of a last hope, but I feel dumb for not looking at places further out sooner.
I dunno. I don't even want to get my hopes up that any of this will even work. It feels like I literally cant get my hopes up. I'm just so tired and so rundown. I'm angry at every doctor Ive ever seen and I'm tired and I dont want to do more scans and go to these new referrals. I know this is a completely different treatment plan than Ive had before, but I just want this shit over. I feel ungrateful about getting this help even!! Like, here you go! Here's that new treatment plan you wanted! What do you mean you arent happy??
It feels like Ive been running on a hamster wheel only to get off and realize theres a whole marathon I gotta complete now. Like, yeah, maybe I will finally get somewhere now. But I'm freakin tired from going in circles and I don't wanna do more okay!!!!
Ugggghh. Just wanted to get all that out I guess.