Edit/Update: UPDATE: I just wanted to say a massive thank you to everyone who has commented, messaged and offered support. 🥹 I genuinely never expected this post do so well. I made it because I was (and still am) completely lost and confused, so seeing so many people share their experiences, reassure me, tell me to keep pushing, and even offer to help me financially has honestly left me overwhelmed in the best way. I’m so incredibly grateful. 💓
A few reporters/editors/journalists have also reached out to me. I haven’t spoken to anyone yet because I’m still trying to process everything, but I’ve decided I will be going to the media and I might put my name to my story. The people close to me who know what’s happening think that being identifiable may hopefully help get things moving, although I’m obviously still nervous about it.
I’ve also been a bit MIA today because I’ve spent most of the day trying to sort out private options and get some idea of costs. Unfortunately, I can’t get anywhere without the referral first, so I won’t really know what my options or the costs will be until my appointment on Tuesday morning. I’ll update everyone once I know more.
As for the offers to help financially, I genuinely never expected or asked for that, and nobody needs to contribute anything. I’m incredibly grateful that people have even offered, especially when I know how hard things are financially for so many people. 🫶🏼** I’m not sure yet whether something like GoFundMe or PayPal would be better, I don’t feel fully comfortable with putting my bank details online, so I’ll figure that out if it becomes necessary**.
I’m trying my best to reply to everyone, but my symptoms have been playing up and I don’t have the energy to respond to every comment right now. I’ve tried to upvote everything so you know I’ve seen it. Please know I really do appreciate every single person who has taken the time to reach out. ❤️🩹
-
This is long, sorry 😭 TL;DR is at the top for anyone who doesn’t have time to read the whole thing, but if you’ve been through something similar, I’d really appreciate you reading the full post because there’s a bit more context to what I’m asking.
TL;DR: I’m 26F with a breast lump that has been growing for almost 6 years, with worsening symptoms and a family history of breast cancer. My GP is very concerned and has been pushing for a biopsy for around 2 years, but the hospital has repeatedly told me I’m too young and to wait another 6 months. Even after an ultrasound this year where the doctor couldn’t determine whether the lump was benign or malignant and sent me for an emergency mammogram, I was ultimately told it was a swollen milk duct and that I didn’t need a biopsy. I’m hoping to hear from other NZ women who have been through something similar with the public system and whether they eventually got properly investigated.
-
Hi everyone. Has anyone in NZ had a similar experience with a persistent breast lump and repeatedly being told to wait because of their age?
I’m a 26F and I’m hoping to hear from anyone who has had a similar experience with the NZ public health system, particularly anyone who was repeatedly told they were “too young” for something serious, only to eventually be investigated further??
I’m not looking for medical advice - I am already being seen by my GP, who has been absolutely lovely and has been advocating for me throughout this. I’m more interested in hearing from people who have experienced something similar, whether their eventual diagnosis turned out to be something serious or completely benign, and especially whether anyone has gone through the same back-and-forth with the hospital.
I’ve had a lump in my right breast, around the 10 o’clock position, since around January-February 2021. When I first noticed it, it was roughly cherry-tomato sized, irregular but somewhat circular, and not particularly moveable. It has gradually grown over the years and is now much larger, more rectangular in shape, and visually quite obvious. My symptoms have also progressed. I won’t list every single symptom because there are quite a few, but the main ones are:
- A non-moveable, growing breast lump that has changed in shape and is now very visible.
- Inverted nipple.
- Orange-peel-like skin, flaking, and occasional sores over/on the area of the lump.
- The lump has become large enough that you can visibly see it.
- Numbness over the area of the right breast where the lump is.
- Severe night sweats that have continued and won’t go away.
- Right shoulder pain.
- A swollen lymph node around my collarbone, which then progressed to swollen lymph nodes in my neck. What originally started as one swollen neck lymph node became two, then four, and now multiple swollen nodes, which my GP has confirmed.
- No obvious armpit lymph-node involvement, although the area is swollen and tender.
There are other symptoms as well, but those are the main ones.
(Breast cancer also runs in my family, which has understandably made this whole situation even more frightening for me.)
My GP is very concerned and has been trying to get me investigated properly. My blood tests apparently haven’t shown an obvious infection or inflammation that would explain the swollen lymph nodes. My GP also gave me a course of antibiotics to make sure we weren’t overlooking an infection as a possible cause.
She has been trying to get me a biopsy for around two years, particularly because the breast lump has continued to grow and because the combination of symptoms such as the shoulder pain, night sweats and lymph-node involvement has been worsening.
She has been fantastic throughout this and has repeatedly advocated for me. She has also warned me that referrals are often being declined, so I understand that there are pressures on the public system. What has been difficult for me is feeling like my age has repeatedly been the main reason I haven’t been investigated further.
I first had an ultrasound in 2021, when I initially noticed the lump, and was told to monitor it for growth. I mostly forgot about it for a while until it started causing me more problems in 2024. Throughout 2024, the hospital repeatedly declined to see me because of my age, saying that it was very unlikely to be anything serious and asking me to come back in six months…so I did. And I was told essentially the same thing again.
Eventually, I was accepted for another ultrasound at the beginning of this year, in January 2026. During the ultrasound, the doctor performing it looked me in the eyes and told me, “I have no idea if this is benign or malignant.”
I have learning disabilities and genuinely didn’t understand what those terms meant at the time, so I didn’t realise how significant that statement was until I googled them afterwards. I was understandably shocked and quite frightened by this.
I was then sent to the waiting room for what I was told was an emergency mammogram. I had the mammogram, and then… nothing?!
Months went by without hearing anything. My GP kept chasing the hospital for the results, and eventually the response was that it was a swollen milk duct, no lump had shown, and no biopsy was needed.
This was extremely confusing for me because there very clearly was a palpable lump, and during the ultrasound the doctor had been unable to determine whether it appeared benign or malignant and had sent me for an urgent mammogram.
I don’t want to accuse anyone of doing anything deliberately wrong, because I obviously don’t know what happened behind the scenes or how these decisions are made. I’m simply trying to understand how I ended up in this position and whether anyone else has experienced something similar to this?
My GP requested another ultrasound and biopsy referral, but again the hospital response was essentially to wait another six months because of how unlikely something serious is considered to be at my age.
The difference now is that I’ve had this lump for almost six years, it has continued to grow, and my symptoms have become considerably more noticeable.
The hospital’s position seems to have changed from “you’re too young for this to be something serious” to more of “even though the lump is growing and your symptoms have progressed, we still don’t feel it warrants a biopsy and you should come back in six months.”
I genuinely don’t know what to make of it anymore. I’m exhausted, confused and sad. I also can’t afford to go privately for a biopsy, so that’s unfortunately not an option for me.
I’m posting because I’d really like to hear from other New Zealanders who have experienced something similar - not necessarily people whose lumps turned out to be cancer, but people who had a persistent or growing lump and/or concerning symptoms and were repeatedly told to wait, particularly because of their age.
Did anyone else feel like they were being dismissed or repeatedly sent away before eventually getting properly investigated? Did you eventually get a biopsy or further testing after being told you didn’t need one? And if you did, was it ultimately something serious, or did it turn out to be completely benign?
I’m also aware that anxiety can make situations like this feel much bigger than they actually are, which is partly why I’m asking. I’m genuinely worried that I’m putting myself through all of this stress only to eventually find out that it was nothing serious and the hospital was right all along.
At the same time, I’m struggling with the fact that the situation doesn’t seem to be improving and I don’t know whether I’ll ever actually get the biopsy my GP has been trying to get for me.
Again, I’m not asking Reddit to diagnose me or tell me whether this is cancer. I’m already under the care of my GP. I’m just hoping to hear from people who have been through something similar and can tell me what happened in their own experience.
Thanks to anyone who takes the time to share. ❤️🩹