My mom passed away two weeks ago, I am feeling immense grief so I have decided to write about her cancer journey.
My mother was such a strong person. In December 2022, my mom was diagnosed with stage 4 lung cancer, I was 18, my siblings were 16, 14 and 11. My dad is the same age as my mom, and he is a doctor.
She had the ALK mutation, which meant that she could take targeted therapy drugs to combat her cancer. It went well for around 7 months, she was responding well to the treatment and we had so much hope. The night before my LNAT exam (I am currently a law student in the UK), I found out that my family was hiding from me that the targeted drugs had stopped working, and she was starting chemotherapy immediately. I became depressed and hopeless, and I refused to sleep that night. I ended up not finishing my LNAT exam, and missed out on my dream university.
Before she started chemotherapy, at least I could pretend that everything would be okay, she would keep taking the medication, her cancer would go into remission and she would be okay for years, decades. I could just be hopeful. But when I found out she would start chemotherapy, I broke down. I could not handle it. I knew that this meant her lifespan would be shortened, and it would be extremely painful for her to go through.
Around the end of 2023, my mother was going through chemotherapy, radiotherapy and immunotherapy. She was so so strong through it. She gained a lot of body weight from the immunotherapy, her looks changed so much and it was hard for her to even move. Her self confidence went down a lot from her changed appearance. I remember spending a whole afternoon just massaging her legs because they had bloated a lot, it was to help her blood circulati. She would always tell me that it helped her movement and pain so much after I was done.
I gave her massages frequently throughout the years. It was usually before she went to sleep. She loved my massages. It was one of those moments of the day that she would be very relaxed, and we could just talk like normal. She would be in less pain and would be smiling and laughing during our conversations. I miss those moments so so so much.
There were also many close calls when she was going through immunotherapy. She passed out one night from fluid in her heart, and needed to have immediate surgery. We were all so so scared and were crying, we thought we had already lost her. It was the night before my flight back to college. I skipped my flight and stayed for another week to be with her. She fainted again the night after I went back to college.
In 2024, she slowly recovered from the side effects of treatment. She seemed fine, her cancer was not progressing, so I decided to pursue my dreams of studying law in the UK. I knew I would be very very far away from my family, but my family reassured me, and I went. In 2024 and 2025, I would come back for full summers and winters to take care of my mother and my family. She was doing well, we were creating a lot of memories, and everything seemed normal.
Fast forward to 2026, she started having pleural effusion (fluid in her lungs). I know that my family has been lucky, many people with stage 4 lung cancer have only days or months to live, but due to her specific ALK mutation, targeted therapy helped a lot and she managed to live on for four years. We even went on family trips. My family visited me in the UK, we also went to China together early this year.
After our China trip, we found out about her pleural effusion, and started regular drainage of her lungs. She also started becoming dependent on oxygen machines, needing oxygen concentrators to keep her blood-oxygen level up. At first she only needed it a few hours a day, but eventually she was using it 24/7. This became the new normal in our family. Despite being sick, she kept insisting on cooking for us every day. She was such a good cook. It was what she prided herself on. We all loved her cooking, she was so creative and intuitive about it. Our new normal was also carrying portable oxygen concentrators when we went outside. We would strap it at the back of her electric wheelchair, and she would just race around (she was a fast driver haha).
Eventually, besides becoming completely oxygen machine dependent, she also started getting weaker. There was no cancer progression, her right lung was completely fine (many people can live on healthily with just one lung), but she just slowly started feeling more out of breath. In July and August 2026, I started researching for further treatment of her pleural effusion. I read medical journals, talked to doctors and discussed them with my dad. My mother's quality of life had been severely affected by her oxygen dependency, and it had started making her feel hopeless. My research made her hopeful, and we regularly discussed different treatment options. We were so so hopeful.
One of her doctors, a lung cancer specialist, said we should not attempt treatment because it is not recommended for stage 4 lung cancer patients. We found out that he said this because he believes that the mortality rate of stage 4 lung cancer patients makes it pointless to try to solve her pleural effusion. In other words 'she's gonna die at any time so why stress it'. My mother was furious at this, I was too. So we wanted to get second opinion on this, and we ended up deciding to go through with the treatment.
However, we could not do the treatment because my mother was unfit to fly. Her lung capacity had deteriorated too much for her to fly for treatment. This was in September 2026. It was such a fast deterioriation because she had just flown in July 2026. Therefore, she had to start doing more breathing exercises and physical therapy to increase her lung capacity for her to be fit to fly and to do surgery.
Some of the doctors suggested an IPC (catheter). She did not want this because she said she would not feel 'human' with a bag attached to her chest every day. I helped her fight it, exploring other treatment options before I had to go back to the UK for my studies.
The day I went back to the UK, the day I saw her for the last time, she insisted on driving me to the airport. I remember hugging her and kissing her and telling her that I loved her. I also told myself that that would not be the last time I see her. She is fit enough to drive me to the airport, so surely her condition was not that bad.
A few days after I went back, my mother was driven to another town to install an IPC. The doctors had decided it was the best treatment option with the least risk. However, after installing the IPC, it felt like she had lost hope for life. They told her she would have to wear it for the rest of her life. I did not know this. I was also previously told that the IPC could be temporary, that it could just be used to temporarily drain fluid in her lungs until she got better, and then she could get permanent surgery.
So she lost hope for life and her condition deterioriated very fast. I really wanted to be there for her in her last days. She insisted that I do not come back to take care of her, and that she wanted me to focus on my studies, and that this would make her feel at peace. I did as she said, I studied and carried on with life. My dad also told me that she still has weeks or months to live, and that I should focus on university.
I did as I was told, and I was going to fly back during reading week at the end of October to see my mother. However, I received a call on October 14 that her condition was rapidly deterioriating and she was going to die that day. I was completely devastated.
She was in a coma-like condition and she could not speak. She would move her eyes a bit when we were speaking, I think she was trying to tell us we could hear her. Before she passed, she even raised her arm and pat my sister on the back. I think she was trying to say goodbye and reassure us.
Sadly, I did not get to say goodbye to her. She passed away when I was at Heathrow Airport waiting for my flight. We were on video call. My other sister was on a flight back to her. My father and two siblings were hugging her as she passed. I spent the 10+ hours on the flight back crying and feeling completely empty.
It has been almost two weeks since my mother passed away. I miss her so so much. She was such a strong person, she was put through so much. I had watched her do endless surgeries and procedures and treatments. She did it all for us. For me, my siblings, my dad. She did not want to leave us. She wanted to see us grow up and flourish. She wanted to have more time with my dad, her high school sweetheart.
I am grateful for the (almost) four more years I had with her. The doctors and my dad made it happen. I just, wish I had more. I am 22, and I am grieving all the milestones I will miss with her. My graduation, my wedding, my first kid. I am so incredibly sad that she will not be there with me.
I also know how hopeful she was. I knew how much she wanted to live and be with us. Every time I think of how hopeless she must have felt at the end, I feel close to having a panic attack. They say she was at peace when she went, but I know better. I had so so many conversations with her during my summer break. We had so many plans, we had so much hope of her getting better, all those dreams died with her. And a big part of me died with her too.
I keep trying to tell myself that her pain is over, her struggle is over and she can finally be at peace. This is definitely true. But I still miss her. I miss her laugh, her stubbornness, her energy and her food. I miss massaging her feet and taking care of her. I miss hugging and kissing her goodnight every night. I wish I did all this one last time.
I know I was honouring her wish by staying in the UK and studying. But if I knew she would pass away this soon, I would never have went back to the UK and I would have stayed to be there for her one last time.
She frequently told me and my dad that I took care of her best. I listened to her needs, I was attentive and she felt heard and seen. This brings me a lot of peace. But it also brings me a lot of grief that I could not be the one there taking care of her during her last days. I know she was unhappy with the food my dad cooked and the way she was taken care of. I think she wishes I was there but she did not tell me because she wanted me to focus on my life. I can't help but feel like I will regret my decision not to fight and go back, for the rest of my life.