First time ever posting one of these. I apologize for how long this is in advance.
My mother (59) was diagnosed with rheumatoid arthritis around 2010. We lived in a very poor, rural area, where healthcare was not good. By 2018 she was in a wheelchair, and due to not working with therapy and relying solely on meds, she developed heart failure, diabetes, and severe arthritis all over her body. I (31 M) was in college when the worst of her health issues began, and missed the transition to a wheelchair. My father then died suddenly at 56 in 2024, and my mother refused to move out of their house, despite the fact she could not leave without assistance. She was quite literally trapped there unless someone came to get her. She was able to survive on deliveries for groceries and meds. And she developed a complete spending addiction and hoarding.
Long story short, despite my sister living 15 minutes away, I was responsible for managing everything. My wife and I lived 3 hours away, and at least once a month I would drive to her house for 3 days straight to work and fix things. I took over all of her finances. I tried to guide her to better medical care, but I work 60-80 hours per week, and simply could not do more.
We finally convinced her to sell the house and use that money to get a very nice apartment 10 minutes from our house. I live in an area with world class healthcare, and I pulled every string I have to get her in with the best specialists for her diseases. The apartment was all one floor, on the first floor, even had a handicapped accessible pool. I had to pack and move her from a 5 bedroom house with two garages into this two bedroom apartment essentially alone. She didnāt want to get rid of anything, and every day was a fight over stuff. We wonāt even get into the work of selling her house, but essentially I spent every weekend for 4 months either packing her and moving or working to get her home for sale. This entire time, my wife was pregnant with our first child. Kudos to her, she helped so much, and did not complain as much as she deserved to.
My mother never wanted to leave her new apartment. I believe she became depressed that she was no longer in her āforever homeā that she bought with my dad. Other than going to appointments, she never wanted to go explore her new home. She continued getting her food and groceries delivered, including ordering food from two restaurants literally in the same parking lot of her apartment complex for delivery rather than using her nice scooter to go pick the food up. She only wanted to stay in her chair and complain about her pain. And buy stupid things online. She essentially expected to be waited on hand and foot, and it was faster and easier for me to just handle everything.
5 months after moving into this apartment, while my wife and I were on our first vacation in years, she decided to stop taking some meds and ended up in the hospital for a week. She became completely bed ridden from there. A few days after getting home she fell and broke two vertebrae in her back while trying to go to the bathroom. After a month in a rehab, she seemed stronger and more motivated to try to move and explore. Then three days after getting home from rehab, she fell again. From here, she completely shut down and refused to do anything outside of laying in her chair. We had to hire a nurse to come in for 4 hours a day to help clean her and bathe her. I drove two hours to get a hospital bed from a guy off Facebook marketplace and a Hoyer lift so we could just get her up. Even with home health therapy (insurance refused to pay for another rehab stay) she did not progress. After about 6 weeks of having to drive to her apartment almost every day to wipe her (of course after the nurse we were paying $4k a month had left), we forced her to move into an assisted living. So for the second time in 8 months, I had to down size her to a studio room in an assisted living. My 8 month pregnant wife and her family helped me move her, and then we put the rest of her belongings in a storage unit. She remained focused on her things more than the fact I was trying so hard to make her new home as safe and comfortable as possible.
Fortunately the assisted living is going well. We have the expected struggles of getting her timely help when she presses her call button, and the food is hit or miss. But she is safe and I no longer have to drop everything to clean her. Of course her main concern is when she will be able to get her own apartment again.
After my child was born (healthy boy), my wife and I had to set very strict boundaries. As you can hopefully understand, a year of me leaving my wife and literally missing her entire pregnancy to move and care for my mother had created significant resentment. After multiple instances of unsolicited advice and not listening to our instructions on how to hold the baby, my wife snapped. I was put in a position of being in the middle of an angry mother and a disabled mother, which I do not wish on anyone. Fortunately, after a very stern series of conversations with my mother, things are going the right way. Maybe we will have a holiday where she is able to come and it not cause my wife to have severe anxiety. Maybe.
Why I have written this incredibly too-long post is because I am lost on what to do from here. I am going to put my wife and my child first, and am done going above and beyond for my mother. I feel a tremendous amount of guilt for not realizing how poorly I was treating my wife, and how unfair the entire situation had become for her. But now my mother is in an assisted living hours from the rest of her family. Her health is improving significantly (diabetes under control, down 50lbs, injections in her knees, a pain specialist, and a therapist for her depression). She still canāt get in a car, and that is limiting her seeing us and having a quality life. I have to rent a Braunability van to take her places, which is not cheap. She also pays for a transport service to all of her appointments, which is about $150 three or more times a month. She is the youngest person in this assisted living by almost a decade. She has become close with some staff, but she basically has no friends who are not paid to help her.
Does anyone have any advice on things I can try to help her create an identity other than being disabled? I have recently seen a glimmer of hope, where she seems like she just needs something to look forward to and be excited for. That was being a grandmother, but that has gone poorly (based on her actions and since we canāt get her to him without tremendous effort.) Her life is just laying in a bed, scrolling social media, doing some exercises that arenāt really improving her independence, taking meds that make her sleep all day, and maybe eating bland food with no salt. I understand completely why she is depressed, and feel a tremendous amount of guilt that I cannot explain. I know her choices have been her own, and she should have tried harder 20 years ago to stay out of a wheelchair. Her life has been so hard, because she always takes the easy path, and never wanted to try to not depend on pills.
I feel torn between trying to give her the best end her life as possible (which means I am not fully present for my wife and child) or essentially abandoning her in a home to rot. I try very hard to balance it, with a priority now on my family first, but no one is happy. Especially me.
Thank you in advance for any advice, ideas, or just a word of positivity