hi, i’m 22 and my mom is 51. she has lung issues and sleep apnea. she is required to wear oxygen and sleep with a CPAP mask. she also suffers from depression and anxiety.
my caregiving started back when i was 14. my grandmother had similar issues to what my mom has now and i was the one who went in to all of her appointments with her, stayed with her in the ER/hospital, etc.
by the time i turned 18, my mom had her first hospital stay for her issues. i had been admitted to college, i was saying goodbye to my grandma before leaving and she told me “i don’t know what we’re gonna do without you.” because i was the biggest help to her and now to my mom. i got into my dorm room and had panic attacks all night and ended up dropping our from the guilt i felt leaving them.
i came home and pretty much threw myself into the caregiving role with them both. when i was 19 my grandma passed away. and since then it has heavily affected my mom’s mental health.
after i dropped out of college i was jobless until i was 21. i finally got a job and i enjoyed it, but my mom started to decline without me here 24/7. i didn’t get a chance to get my drivers license growing up and have struggled to get practice in, so she was my main source of transportation. she started not being able to get me there in time and i would have to run to work last minute, or i would have to walk home. my job required me to work out of town once a month. so i ended up having to leave because it isnt feasible as she is declining.
my grandma lived almost 2 more decades after she was diagnosed. she kept up on her doctors trips and her health, she did things for herself. my mom, on the other hand, has seemingly just.. given up. the only time she moves is to go to the car or to go to the bathroom. she doesnt go into stores, she doesnt have any hobbies. she sits in her chair all day watching tv or being on her phone. i try to encourage her to move, to do things, walk the extra few steps to the refrigerator to get her own drink when she’s thirsty… but she just wont. i can’t get her to make her follow up appointments with her doctors, she talked to one over a year ago about a surgery they wanted to do that could really help her. it required her to lose weight and stop smoking for 6 months. but we can’t get her to try. she promised me 4 years ago she was done smoking cigarettes, and just about 2 days ago she told me she was having her “last day of smoking“ before taking a hit of one the next day. and she for some reason wants to chain smoke weed… im saying she wants to have about 6-8 joints, two at a time, a day. she had medication for her depression that she takes at night, but it caused a really odd lucid dreaming spell and it scared both her and my dad and i.
recently, it has been a fight to get her CPAP mask on her at night. she falls asleep in her chair over and over for hours, you wake her up to try to get it on her and she gives a “i’ll do it in just a minute!, i’m awake!, or wait, i need to use the bathroom first!” and then she’ll sit there and not do anything and doze off again. and then just a cycle. she was hospitalized 2 times in one month from sleeping without the mask and getting an over abundance of CO2 in her, which causes her to be INCREDIBLY confused (last time she went in, i asked her the year and she said it was 203052.) . it is to the point i am up until 7:30 in the morning just trying to get her to put it on, crying my eyes out begging her while she acts like im just being an asshole and trying to fight her. what i’m doing is trying to avoid hospitalizations.
i have tried nicely with her, i have spent years crying and begging and trying to get her to hear me out on how this affects us too and how worth it is to keep trying to get better… at this point i feel like she doesnt care to be in my future. she doesnt care to try and continue forward with her life. i’m already holding onto w LOT of grief because i have lost over 6 people i love dearly since i was 17… i’ve begged her to try and she just wont. i feel like i’m using all of my will to live trying to get her to want to be alive. i want my own life, i havent gotten to move out of my parents house, i havent gotten to keep a job for more than a year. and honestly, resentment is growing. i just want my mommy with me when my life begins but at the same time i feel like i cant let my life begin because i am the only one in my family that actually enforces her to not smoke or to put her mask on… i have two older sisters but they haven’t helped. i was 17 calling the hospital to check her condition and figure things out while my sisters were in their twenties not wanting to call the hospital because they refuse to make calls. i feel like if i move out or if i actually let my life begin, she‘s just going to die because she gives up and nobody else in my family has shown they can step up for me. and then i’m going to be entirely taken down by the grief i have been fighting so hard to avoid.
i keep losing my temper and yelling at her because i don’t understand why she wont try, why she’s so stubborn. why my sisters and i arent enough to make her want to live. my oldest sister and i have both come to her saying we feel suicidal because we feel like she’s given up and it’s too hard to witness. its like nothing gets through her head. which has lead me to this point of just being angry and yelling and i know its not helping and i usually just end up walk away in tears and with a deep hurt and disgust in myself. i’m just so tired. i feel like she’s killing me right with her. she swears she’s trying to get better and that she isnt trying to just let herself die, but her actions are speaking so much louder than anything she says.
it’s just killing me. i used to be happy, i used to be full of optimism and excitement for my life. but now i’m so mad. sometimes i beg god to just kill me. i’ve lost my enjoyment for life. and its not just because of her condition, i have a lot going wrong in my life. but when i look at my mom and i think about all the ways and times she could have avoided getting to this point she at now, i just feel so angry and hurt. i don’t know how to get her to want to try. i don’t know what i can do to get life worth living again for us both.